Familial Ovarian Cancer Registry
Learning more about how ovarian cancer runs in families and which genes may be involved is important to discovering new ways to prevent, detect and treat the disease. Roswell Park founded this registry to track and store data from women nationwide to help cancer researchers identify ovarian cancer-associated genes and improve genetic and psychosocial counseling for these patients.
Women over age 18 with a family history of ovarian cancer are encouraged to join the Registry. For more information, call 1-800-OVARIAN (1-800-682-7426) weekdays from 9 a.m. - 5 p.m. EST.
The Women’s Resource Center
This center provides breast and GYN cancer information and resources for all patients and their caregivers. The center offers free wigs, scarves and hats for patients receiving chemotherapy, skincare classes, connections to support and advocacy groups and a lending library with print and video.
Sexual Health Clinic
Cancer and cancer treatment impact the ability to interact intimately in a number of ways. This clinic addresses issues such as low libido, pain with sex, anxiety, depression, body image, changes in anatomy or function of the genitals, breasts or skin, and other factors that affect sexual life.
Cancer Coach Program
This program offers patients the opportunity to speak with cancer survivors who know first-hand the impact of a cancer diagnosis. Talking with someone who has lived with cancer can be comforting and may help reduce the sense of anxiety and isolation. Patients may be matched with a coach based on cancer diagnosis, stage, age and/or gender. Cancer Coaches are trained and dedicated volunteers who provide support, comfort, and practical information. Cancer Coaches do not provide medical advice.
Support Groups & Networking
The Ovarian Cancer Project provides information and education to the WNY community about ovarian cancer symptoms and risk factors and offers support and networking opportunities to women (and their families) with ovarian or other gynecological cancers. Programs include:
- Support groups that are professionally facilitated. For more information, contact Kathy Kurtz, LCSW Support Group Program facilitator at 716-675-0301 or email email@example.com.
- Comfort & Hope Totes, given free to every woman newly diagnosed with ovarian cancer at the Roswell Park GYN Center. The totes are filled with helpful items to take to chemotherapy appointments, including a message of hope from women who have been on the journey and are extending a hand of understanding and support.