Cancer Survivorship

On October 15, 1992, I was diagnosed with stage IV non-Hodgkin lymphoma. Upon hearing that news, I went completely numb and silent as we drove over to my parents to break the news. I could not bring myself to look or speak to them, as I was in complete shock.

FOMO, the abbreviated slang meaning “fear of missing out,” is a huge mental and emotional side effect of being a young adult cancer survivor and represents just a sliver of the unique challenges we have to face during and well after the fight of our lives.

My early twenties were everything I imagined they would be. They were fun, filled with life and discovery, naive in the best of ways, connected by travels, and laced with endless dreams. This was until I hit a road block at age 25. Cancer stood in my tracks. What was I to do?

During my own cancer journey, I’ve learned a lot about the importance of asking questions and getting multiple opinions. I had to be my own advocate to ensure the best possible care. Otherwise, my outcome might have been very different.
Exercise. You know it’s good for you. It helps keep you limber, reduces stress, improves mood and self-confidence, sharpens memory and helps to keep you healthy and in good shape.
In 1998 at age 24, I worked for a Congressman in the U.S. House of Representatives, and I had plans for law school. But, the unexpected happened when I was diagnosed with a brain tumor.
Waiting to turn 21 as a member of the millennial generation is a rite of passage with a whole slew of traditions. For me, it was drinking a margarita at midnight on a Tuesday while doing advertising homework, enjoying a birthday cake with a drunk look-alike Barbie doll adorned by liquor shots and finally using those alcoholic emojis on Facebook without fear of legal repercussion.
If you are considering starting a clinical trial, either because your doctor recommended it or because you or an advocate found a trial that seems appropriate, I have this easy advice: “GO FOR IT!” What have you got to lose? Trials are safe, well researched and documented. You, as a patient, are monitored and cared for like you never thought possible. You have so much to gain!
Having such a simple question asked a certain way can really humanize you during a time when normalcy seems like the distant past. I was still Mary. I still had the same parents, same car and same clothes. Why should being a little extra sick make a difference?

Most cancer survivors will tell you they have two extremely vivid memories: the moment they received their diagnosis and the moment they finally finished treatment. However, in between, and for people who may never finish treatment, there are many types of victories worth celebrating.

Everyone has their own unique story — executives of high-powered companies, college students, caregivers and cancer survivors. Lani Peterson, PsyD, has spoken and listened to people from all walks of life, each with their own special experiences and personal trials.
On October 15, 1992 my life changed dramatically. After Multiple CT scans and painful biopsies, I was diagnosed with Non-Hodgkin's Lymphoma.