MDS Resources & Services

Advance Blood Draw

Reduce the time you spend waiting at your next scheduled appointment — get your lab work and radiology tests done in advance. Roswell Park offers various lab work locations! Choose from three Roswell Park locations, or take advantage of our partnership with Catholic Health System, which allows you to select from three additional suburban locations. Schedule now in your Care Center or call 1-800-ROSWELL (1-800-767-9355).

Assessment and Treatment Center

The Roswell Park Assessment and Treatment Center (ATC) is open Monday through Friday from 9 a.m. to 9 p.m. (last patient intake at 8:30 p.m.)* and weekends from 9 a.m. to 5 p.m. (last patient intake at 4:30 p.m.)*.

This patient care service supports our current patients with immediate but non-life threatening symptoms during the day and when our clinics are closed. Please know that this is not a walk-in clinic and does require a referral from your Roswell Park physician or the physician-on-call. If you are experiencing non-life threatening symptoms, you should call your Roswell Park clinic. If your clinic is closed, call Roswell Park at 716-845-2300.

*Note that if you are experiencing non-life threatening symptoms after the ATC closes, you should still call us at 716-845-2300. There is always a physician on call to help you.

Communication in All Languages

Patients who do not speak English, or who would prefer to speak a language other than English, have easy access to interpreters. Roswell Park contracts with the Language Line, a phone service that provides professional interpretation by certified medical interpreters in more than 170 languages, 24 hours a day.

Non-English-speaking patients can access Language Line services by making arrangements through any member of their health care team or, if off-campus, by calling Roswell Park's Cancer Information Program at 1-800-ROSWELL (1-800-767-9355), available Monday through Friday from 8 a.m.–8 p.m.

How to Read Your Pathology Report

Cancer treatments are becoming more and more targeted, so an accurate and comprehensive analysis by a pathologist is critical in determining the best approach. Learn how to read your pathology report.

Nutrition

Good nutrition is especially important while you are receiving cancer care. During your treatment, adequate intake of calories, protein, vitamins and minerals will help you to be strong, maintain your weight, and promote the healing process. Before and after your treatment, a healthy diet based on moderation, variety and balance will help to promote a good immune system, give you energy, and enhance your overall health. Our Nutrition and Food Service team is dedicated to providing nourishing meals and nutrition care to promote quality of life throughout the spectrum of your cancer care experience.

Patient Advisory Council

Created in 2012, Roswell Park’s Patient Advisory Council represents a “culture change” in the way the hospital operates and how it receives feedback from our patients. Patients who join the advisory council become involved with every level of care and are invited to take a hard look at the services and procedures in place at Roswell Park, then provide suggestions for how to make improvements.

If you are interested in joining the Patient Advisory Council, please call Roswell Park’s Department of the Patient and Family Experience at 716-845-8114.

Psychosocial Oncology

Our Psychosocial Oncology team is a lifeline for our patients with MDS, beginning at the time of diagnosis. The team will meet with you to determine your needs, offer counseling for you and your family, and provide a caregiver orientation and networking program for your loved ones.

We know that your social, emotional and spiritual well-being are as important as your physical health. Our social workers and clinical psychologists will work side by side with your medical team throughout your treatment and beyond. Services include:

  • Educational programs about MDS and leukemia
  • Emotional support, including support groups and psychotherapy
  • Assistance in arranging sick leave and disability
  • Arrangement of lodging, transportation or language/interpreter needs
  • Help in connecting with financial assistance programs and other community resources
  • Assistance with advance care planning, palliative care and/or hospice referrals, as needed

Family Support

We extend our services to relatives and caregivers, offering psychosocial support as well as assistance with all of the practical considerations necessary to care for someone undergoing cancer treatment. 

Family members are welcome to attend support group meetings or they may take advantage of private consultations with our Psychosocial Oncology team by calling 716-845-8022. Consultations are free and confidential.

Purple Shirts

The American Cancer Society and Roswell Park Comprehensive Cancer Center worked together to create a healthcare hospitality program that connects patients and their families with cancer survivors. Dressed in purple shirts, these dedicated volunteers visit clinics throughout the Roswell Park hospital, bringing compassion, understanding, and practical information about Roswell Park resources and supportive services. If you don’t see a Purple Shirt in your clinic and would like to speak to someone, please visit The Resource Center for Patients and Families at Roswell Park, or call the Office of Patient and Family Experience at 716-845-8114.

Smoking Cessation

Roswell Park Cessation Services (RPCS) provides evidence-based, best practice tobacco cessation services to Roswell Park Comprehensive Cancer Center employees, state quitlines, healthplans, and employer sponsored programs.

Just Breathe

Quitting smoking is hard enough, but struggling with nicotine withdrawal while undergoing cancer treatment is a major challenge. Roswell Park’s cessation program, Just Breathe, offers individualized quit plans and provides behavioral counseling, pharmacotherapy and cessation support to all Roswell Park patients and their families. For more information, call 1-800-ROSWELL (1-800-767-9355).

New York State Smokers’ Quitline

Based at Roswell Park and supported by the New York State Department of Health Tobacco Control Program, the NYS Smokers' Quitline has logged well over one million calls since its inception. Call 1-866-NY-QUITS (1-866-697-8487). Roswell Park was the first health care facility in Western New York to go entirely smoke-free.

Support for Life

We understand the worry and confusion that come with a diagnosis of myelodysplastic syndrome (MDS). In addition to superior medical care and the latest technology, Roswell Park provides a comprehensive menu of services to help you cope with the emotional, financial and day-to-day concerns related to your illness.

Other Resources and Information

An Online Community for Support and Information

To expand care beyond the hospital’s walls and hours of operation, Roswell Park became the first member institution of CancerConnect.com, an online community for people affected by cancer. CancerConnect.com is intended to serve as a source of information for patients, family members and caregivers and as a 24/7 extension of the support networks that are an important resource for cancer survivors, their friends and family.

MDS Support Group

Support groups are one way for patients and their loved ones to find caring support. Led by a trained facilitator, the Myelodysplastic Syndrome Support Group offers psychological support and education for patients and their families, providing the opportunity to ask questions, discuss concerns and learn more about resources at Roswell Park and in the community. Call 716-332-5900 for more information.

Patient & Caregiver Telephone Support Group for Leukemia, Lymphoma, Hodgkin Lymphoma, Myelodysplastic Syndrome or Myeloma

If you are unable to attend the MDS Support Group meetings, please consider this free telephone support group. Registration is required. Contact Coleen Jones, RN, at 716-834-2578, toll-free at 1-800-784-4667.

Resource Center for Patients and Families

The Resource Center for Patients and Families houses a mini-library of cancer-related information, from the National Library of Medicine’s MEDLINE® database to details about clinical trials. Patients who have lost their hair as a result of cancer treatment may also visit the center to choose a free wig, and patients and family members may borrow DVDs to watch while they’re here at Roswell Park.
Location: Hospital - First floor, in the Sunflower Café - Conference Room A

Hours: Monday through Friday, 9 a.m.–4 p.m.

Telephone: 716-845-8659


Social Media

Follow Roswell Park on Facebook and Twitter for up-to-the-minute updates on events, services and other relevant information.

Additional Resources

Aplastic Anemia & MDS International Foundation

The Myelodysplastic Syndromes Foundation

National Cancer Institute: General Information About Myelodysplastic Syndromes

National Cancer Institute: Coping with Cancer