Familial Ovarian Cancer Registry

The Registry

The Familial Ovarian Cancer Registry is a database and scientific repository of genetic samples and lifestyle data of families who have a history of ovarian cancer. 

Often called “the silent killer” because of its limited early warning symptoms, ovarian cancer is typically only diagnosed after it is too late—when the disease has already spread beyond the ovaries. Annually, over 230,000 new cases of ovarian cancer are diagnosed globally, and 150,000 women needlessly die of the disease each year.

Our mission is to collect and share DNA and lifestyle data from families impacted by ovarian cancer with some of the world’s top scientists to support and expand critically needed ovarian cancer research.

By becoming a Familial OCR participant, affiliate, donor or advocate, you and your family can provide the greatest hope and help to change the course of ovarian cancer history.

Our Purpose

The Familial Ovarian Cancer Registry’s primary goal and purpose is to maintain the world’s largest source of genetic data and family history profiles for research of familial ovarian cancer.

Our goal is to provide top research teams across the globe with accesses to critical resources in order to find better methods for detecting, treating, curing, and eventually preventing familial ovarian cancer.

How We Operate

The Familial Ovarian Cancer Registry is a resource of Roswell Park Comprehensive Cancer Center, located in downtown Buffalo, NY. To find out more about Roswell Park, click here.

Roswell Park Comprehensive Cancer Center was founded in 1898 by Dr. Roswell Park, one of the nation’s preeminent surgeons and arguably the first to articulate the importance of translational research in a cancer center. His revolutionary model of a “multidisciplinary approach” to cancer—with scientists and clinicians working in concert and in consult—has become the standard by which all modern-day comprehensive cancer centers are measured.

From its inception, Roswell Park’s mission –to understand, prevent and cure cancer—has remained consistent with the vision of its founder, and, as Dr. Park intended, 100% of the Roswell Park’s resources are devoted to this mission.