Help Roswell Park Cancer Institute find the answers to cancer
What is the DBBR?
The DBBR is a large database of information individuals like you provide. The information may help us understand why some people get cancer and others do not. It may help us understand the roles of lifestyle, genetics and environment in cancer. It may also shed light on why some patients do better with certain treatments.
Who is eligible to participate?
In addition to the specific patients we enroll in our outpatient clinics, we are in particular need of individuals who do not have a personal history of cancer. Patients' family members, friends, and visitors to the Institute have the opportunity to participate.
How can you participate?
1. You must be over 18, with no prior history of cancer
2. Call 716-845-7774 to speak with a staff member and schedule an appointment
3. If you are accompanying a friend or family member to Roswell Park for a scheduled visit, you can schedule your appointment at the same time. You can also schedule an appointment for a time that may be more convenient for you.
4. During your appointment, you will be asked to sign a consent form and give a blood sample. You will be given a questionnaire to complete and mail back in a postage paid envelope.
What happens to my information and blood sample?
The answers that you provide in the questionnaire, along with your blood sample will be tracked in the DBBR and made available for use by researchers. The DBBR is confidential and your information will be identified by a number, not your name or address. Your personal information will not be shared with employers, insurance companies, family or friends. Roswell Park has an Institutional Review Board (IRB) that protects the rights of all participants and carefully reviews and monitors all research done at the Institute.
What if I change my mind?
If you decide after you've given your information, that you do not want to be part of the DBBR, all you have to do is tell us and your information will be removed from the database and your remaining blood sample destroyed.
Why is my participation important?
Your participation will help advance our understanding of cancer. Through the DBBR, researchers will have immediate access to important information that may ultimately help them understand, prevent and treat cancers. A side benefit is the satisfaction you may feel in helping to make a world of difference in the lives of so many.