Patient Advocates

Patient Advocate Council (PAC)

In order to achieve one of our objectives of sampling understudied tissues/biofluids for early detection biomarkers and integrating omics analysis with patient-reported outcomes, deep and extensive engagement of patient advocates is necessary. Our PAC is composed of consumer advocates from leading local and national EOC survivor organizations with national reach and capacity to represent and serve underserved and culturally diverse patient populations. 

PAC Role within DSOCOC

The PAC is involved in planning, design, implementation, and evaluation of the DSOCOC. They are instrumental in providing patient and advocacy perspective to the productivity and developmental strategies for the DSOCOC. They also serve as active participants in recruitment of patients through their networks of contacts.

Mary Jackson Scroggins - The Pathways Project
Mary Jackson Scroggins, PAC Chair
The Pathways Project

The Pathways Project’s mission is to put people at the center of health-care research and delivery.

Kathleen Gavin - MOCA
Kathleen Gavin
Executive Director

MOCA advocates for ovarian cancer research and programs that benefit our community.

Kathleen Maxian - WNYOCP
Kathleen Maxian
President & CoFounder

WNYOCP’s mission is to provide education on the symptoms and risk factors of ovarian cancer and to provide supportive services to women with ovarian and gynecologic cancer and their families.

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Leni Rayburn
Leni Rayburn
Patient Advocate

BCCR’s mission is to cultivate community among those touched by breast or gynecologic cancer; to empower informed decision-making through education, support, and advocacy; and to advance research in our region with the goal of eradicating breast cancer.

The Blanton-Davis Ovarian Cancer Research Program is a multi-disciplinary integration of research, patient care, education and prevention initiatives focused on ovarian cancer.

Maggi R PAC
Maggi Royle

Caring Together, Inc. is an ovarian cancer support, education, and awareness group located in New York State’s Capital Region.