The CARE Study at Roswell Park

Research Background and Overview

Having a child diagnosed with cancer is very stressful for parents and affects the whole family. When their child is receiving cancer treatment, parents/primary caregivers must balance their existing family and work commitments with the treatment protocols as they adjust to the new demands of being a caregiver of a sick child. Parents/caregivers of children with cancer may receive support, help and assistance from other people.

The main goal of the CARE Study is to understand who parents/caregivers of pediatric cancer patients turn to for social support and how their support experiences shape family outcomes. In this study, we also examine the health and well-being of parents/caregivers, as well as support processes in parents’ daily lives.

At the time of recruitment, all CARE Study participants are parents or primary caregivers of children (ages 0-18) who are receiving active therapy for cancer. This 5-year study is being conducted at Roswell Park and John R. Oishei Children’s Hospital in Buffalo, NY and at University of Rochester Medicine’s Golisano Children’s Hospital in Rochester, NY. Our goal is to recruit a total of 150 parents/caregivers by 2021.

The CARE Study is funded by the National Cancer Institute/National Institutes of Health.

Meet Our Research Team

Our research team is led by Principal Investigator Elizabeth Gage-Bouchard, PhD, Associate Professor in the Department of Cancer Prevention and Control at Roswell Park. Dr. Gage-Bouchard is a sociologist whose research focuses on cancer caregivers, including coping, social support, and adjustment to cancer. Other research interests include how social class influences parent-provider interactions and treatment adherence. Dr. Gage-Bouchard serves as the Director of Community Outreach and Engagement at Roswell Park.

The CARE Study research team includes the following Co-Investigators:

R. Lorraine Collins, PhD is a Professor in the Department of Community Health and Health Behavior and Associate Dean for Research at the School of Public Health and Health Professions at the University at Buffalo, State University of New York.

Kara Kelly, MD is the Chair of Pediatric Oncology at Roswell Park Comprehensive Cancer Center.

Christopher McCarty, PhD is Director of the Survey Research Center and the Bureau of Business and Economic Research at the University of Florida.

Mark Prince, PhD is an Assistant Professor and Associate Director of Addiction Counseling in the Department of Psychology at Colorado State University.

Olle Jane Sahler, MD is a Professor in the Pediatric Hematology and Oncology Division at Golisano Children’s Hospital and the George Washington Goler Chair in Pediatrics at the University of Rochester School of Medicine and Dentistry.

The CARE Study research team includes:

  • Paula Vincent, PhD, Project Manager
  • Hital Patel, BS, Research Associate
  • Susan LaValley, PhD, Research Scientist

We also would like to introduce Julia Devonish, MD, PhD. Dr. Devonish has begun her internal medical residency and we wish her all of the best! At various times during the year, we also enjoy the help of student interns.

Contact Us

If you have any questions about the CARE Study, please contact (716) 845-4954 or carestudy@roswellpark.org.