Pediatric Cancer Resources & Services

  • Lynda Kwon Beaupin, MD, is the Director of Roswell Park's AYA Cancer Program, helping meet the unique needs of patients who are between 15 and 39 years of age.

Communication in All Languages

Patients who do not speak English, or who would prefer to speak a language other than English, have easy access to interpreters. Roswell Park contracts with AT&T's Language Line, a phone service that provides professional interpretation by certified medical interpreters in more than 170 languages, 24 hours a day.

Cancer Resource Center for Patients and Families

RPCI’s cancer information specialists at the Cancer Resource Center for Patients and Families are uniquely qualified to help locate and evaluate the overwhelming amount of online information. They can help with basic cancer information, advanced medical information, and everything in between. Trained cancer information specialists use easy-to-understand terms to explain medical information and provide each visitor with a thorough and personalized experience.
Location: Hospital - First floor, in the Sunflower Café - Conference Room A

Hours: Monday – Friday, 9 a.m. – 4 p.m.

Telephone: 716-845-8659


ASK-RPCI

ASK-RPCI provides information via the telephone. Call toll free 1-877-ASK-RPCI (1-877-275-7724) to speak to a cancer information specialist in English or Spanish. You can leave a message after hours and your call will be returned on the next business day.
E-mail: askrpci@roswellpark.org

Patient Advocate Program

Patient Advocates act as a mediator, a connection between you and your child’s healthcare team. They work with patients and staff to resolve concerns or complaints and to improve effective communication among patients, families, and the Roswell Park care team

Patient Navigator Program

The Patient Navigator program provides support for cancer patients, families, and caregivers as they navigate what can be a complex healthcare system. Roswell Park currently has four trained professional navigators who connect patients with internal Roswell Park resources and community agencies that can address challenges they may face. These may include: financial issues, transportation and lodging needs, lack of medical information, or emotional support.

Nutrition

Good nutrition is especially important while your child is receiving cancer care. During treatment, adequate intake of calories, protein, vitamins and minerals will help your child to be strong, maintain his or her weight, and promote the healing process. Before and after treatment, a healthy diet based on moderation, variety and balance will help to promote a good immune system, give your child energy, and enhance your child's overall health. Our Nutrition and Food Service team is dedicated to providing nourishing meals and nutrition care to promote quality of life throughout the spectrum of your child's cancer care experience.

Group seminars are available on a variety of topics including eating during cancer treatment, healthy eating and cancer-related fatigue.

Psychosocial Oncology

Our team of social workers and clinical psychologists work side by side with your medical team to provide individualized assistance and support to you and your family throughout the course of care. Services include:

  • Educational programs about cancer
  • Emotional support, including support groups and psychotherapy
  • Assistance with sick leave and disability
  • Arrangement of lodging, transportation or language/interpreter needs
  • Linkage with financial assistance programs and other community resources
  • Assistance with advance care planning, palliative care and/or hospice referrals as needed

Family Support

The stress, fear and uncertainties of a cancer diagnosis impact family members and loved ones just as they do the patient. We extend our services to relatives and caregivers, offering psychosocial support as well as assistance with all of the practical considerations necessary to care for someone undergoing cancer treatment. Family members are welcome to attend support group meetings or they may take advantage of private consultations with our Psychosocial Oncology team by calling 716-845-8022 or visiting the office on the ground floor of the hospital (G552). Consultations are free and confidential.

Our Kid-centered Programs and Support

  • Child Life Program

    Provides support, facilitates coping and minimizes trauma in order to encourage normal growth and development and essential life experiences. Led by a licensed medical social worker and child life specialist, our program provides:

    • Developmental and age appropriate activities
    • Group activities in the playroom and in clinic rooms
    • Patient activities and therapeutic play at bedside
    • Pre-procedural instruction
    • Holiday and birthday celebrations
    • Special guests and entertainment
  • Carly's Club

    Offers programs to make life more manageable for children diagnosed with cancer and their families. Carly’s Club members are treated to special events and parties such as a halloween bash, summer picnic, spa parties, VIP Buffalo Bills tailgate parties, and tickets to concerts, theater and celebrity meet-and-greets.

  • Beads of Courage

    A national arts-in-medicine program that honors a young patient’s cancer journey and provides therapeutic support through stringing beads. Children tell their story using beads as meaningful symbols that commemorate experiences and milestones in their treatment path.

  • Pet Therapy

    The dogs in RPCI's Pet Therapy Program provide companionship and emotional healing. In this video, Tara Jane pays a visit to pediatric cancer patients.

    We currently have 15 therapy dogs that are escorted to approved areas by their human companions. Studies show these furry, four-legged volunteers can help improve wellbeing and morale by providing a calming presence. All our therapy dogs are certified by either Therapy Dogs International (TDI) or Pet Partners (Delta Society). Their human companions have completed Roswell Park’s volunteer process.

  • Adolescent and Young Adult (AYA) Cancer Program

    Special program for cancer patients aged 15-39 that addresses the medical, psychosocial, and emotional needs. Provides social and networking opportunities and events, addresses survivorship issues, and provides infertility risk assessment and counseling. Contact us by email at aya@roswellpark.org or by phone at 716-845-4447. We are also on Facebook and Twitter. We are here to listen without judgment, offer our support, and address the issues specific to your needs, including:

    • Camp Good Days and Special Times hosts a camping retreat for young adults who have been touched by cancer. This unique program allows you to bring a guest and provides a positive, social atmosphere.
    • Stupid Cancer has a motto: get busy living! This group organizes happy hours, bowling parties, movie nights and other events where young adult survivors can connect. It’s a national group with local chapters, including a recently-formed Buffalo chapter affiliated with the AYA Cancer Program.
  • School Outreach Program

    A way to help a young cancer patient ease their return to school, RPCI professionals such as a nurse, social worker and or child psychologist visit the child’s school or classroom to help faculty and students understand the patient’s challenges.

  • Fertility Counseling

    Counseling is available for you to discuss your risk for infertility or possible preservation options.

  • Look Good . . . Feel Better

    This program helps patients cope with appearance-related side effects of their treatment by offering skin, hair, and nail care tips; make-up techniques; and wig, scarf, hat, and turban demonstrations. The program is coordinated by the American Cancer Society, the Cosmetic, Toiletry, and Fragrance Association, and the National Cosmetology Association. Offered monthly; call 1-800-ACS-2345 (1-800-227-2345) for information and registration.

How to Read Your Child's Pathology Report

Cancer treatments are becoming more and more targeted, so an accurate and comprehensive analysis by a pathologist is critical in determining the best approach. Learn how to read your child's pathology report.

Social Media

Follow Roswell Park on Facebook and Twitter for up-to-the-minute updates on events, services and other relevant information.

Additional Resources

National Cancer Institute: Childhood Cancers

National Cancer Institute: Coping with Cancer