How the Registry Works

If you are 18 years or older, and meet any one of the criteria below, we strongly encourage you to register for the familial ovarian cancer registry by filling out our short pre-screen questionnaire form.  

Typical Eligibility Criteria

  • A family history of two or more cases of ovarian cancer.
  • A family history of three or more cases of cancer on the same side of your family with at least one being ovarian cancer.
  • A family history of at least one female with two or more primary cancers with one of the primaries being ovarian cancer.
  • A family history of two or more cases of cancer with at least one being ovarian cancer diagnosed at an early age of onset (45 years old or younger).

Because everyone’s medical and family history is different, your answers will allow us to review your particular case and family background to determine if your DNA and family history profile will be a match for our Registry’s goals. After submitting your pre-screening form and our staff determines you are a good candidate for inclusion in the registry, you will be asked to complete a family history questionnaire and sign a consent document. From there, we will work with you and your doctors to obtain a blood sample.

*Ovarian cancers include cancers of the ovaries, omentum, fallopian tubes and primary peritoneal area.

Frequently Asked Questions

Becoming part of the registry is a generous and important act. Your decision will help researchers find the answers they need to save lives and prevent ovarian cancer for future generations. The Registry and the research it supports is 100% funded by generous donations to the Roswell Park Alliance Foundation.

What information or samples do you need?

After submitting your pre-screening form and if our staff determines you are a good candidate for inclusion in the registry, you will be asked to complete a family history questionnaire and sign a consent document. From there, we will work with you and your doctors to obtain a blood sample.

Is it 100% confidential? 

Yes. The Familial Ovarian Cancer Registry follows all federal health guidelines as well as other national and international scientific research privacy protocols.

Is there a cost?

There is no cost to join our registry. We are 100% funded by charitable donations made to the registry.

Why does my blood sample matter for research?

Your single blood donation will have a positive impact for decades, helping lead to critically needed research advances.

What happens to my blood sample?

When we receive your blood sample, our registry team will extract your DNA from the blood and store it in a secure environment for future research projects.