This resource guide is intended to provide general and supportive information about cancer survivorship to patients, caregivers and other interested parties.
If you would like additional information or print copies of the brochures listed below, please stop by the Community Cancer Resource Center (CCRC), call the ASK-RPCI line at 1-877-ASK-RPCI (1-877-275-7724)or email ASKRPCI@roswellpark.org.
Coping With Fear of Recurrence This Web page from the American Society of Clinical Oncology (ASCO) suggests ways to deal with and move beyond fears that cancer will come back, which is very common when treatment is completed.
Cancer.Net - The patient information Web site of the American Society of Clinical Oncology (ASCO). With nearly 25,000 members in the United States and abroad, ASCO is the world's leading professional organization representing physicians of all oncology subspecialties who care for people with cancer. Cancer.Net provides timely, oncologist-approved information to help patients and families make informed health-care decisions, including information on survivorship.
Follow-up Care After Cancer Treatment: Questions and Answers – This National Cancer Institute (NCI) factsheet details what to expect after cancer treatment, and can help patients and their loved ones plan for follow-up care, make lifestyle changes, and make important health-related decisions.
Facing Forward: Life After Cancer Treatment – This NCI publication covers post-treatment issues such as follow-up medical care, physical and emotional changes, changes in social relationships, and workplace issues.
Facing Forward: Ways You Can Make a Difference in Cancer – This NCI booklet provides an overview of the potential benefits of involvement in activities that give back to one's community, as well as the ways in which one can become involved in these activities. Designed for cancer survivors and those who have taken care of someone with cancer.
Facing Forward: When Someone You Love Has Completed Cancer Treatment - The focus of this NCI booklet is to provide care givers with coping strategies to help them shift their focus from treatment to recovery. Discusses the transition to a "new normal," communication skills and feelings, ways to get support, helping with follow-up care, and the need for self-care.
Additional general information on lab tests, diagnostic testing and imaging, pathology, etc.
Treatment Related Issues
NCI PDQ: Lymphedema Management – This NCI document provides information on lymphedema, a common complication of cancer and its treatment that can result in long-term physical, psychological, and social issues for patients. Prevention strategies, symptoms and treatment methods are included. Document is available in patient or health professional version.
NCI PDQ: Post-Traumatic Stress Disorder (PTSD) – This NCI document describes PTSD, its symptoms and how it is diagnosed and treated. Document is available in patient or health professional version.
NCI PDQ: Smoking Cessation and Continued Risk in Cancer Patients – This NCI summary describes the risks faced by cancer patients who continue to smoke. Document is available in patient or health professional version.
- Serving as a global support community that provides 'one-stop' access to hard-to-find resources, peer support and social networks.
- Educating providers about the unique issues facing this population.
- Advocating on behalf of over 1 million young adult survivors to raise awareness of the 'cancer under 40' movement and drive change.
- Gaining a better understanding of the needs of young adult survivors.
- Using music and the arts to connect and unite young adults, build community and make it hip to talk openly about their experiences.