American Bone Marrow Donor Registry
P.O. Box 8841
Mandeville, LA 70470-8841
Provides donor education, recruitment, testing and advocacy.
American Cancer Society
1599 Clifton Road, NE
Atlanta, GA 30329
Provides advocacy, research and information about various cancers and treatment options; sponsors a cancer survivor network and support groups for cancer patient and their families.
American Red Cross New York-Penn Region
825 John Street
Henrietta, New York 14586
Helps patients find compatible unrelated donors for transplants, and assists patients and their families in raising funds for tissue typing.
Aplastic Anemia & MDS International Foundation
P.O. Box 613
Annapolis, MD 21404
Provides educational materials, a newsletter, and patient assistance, support and advocacy.
Blood and Marrow Transplant Information Network
2900 Skokie Valley Road, Suite B
Highland Park, IL 60035
Publishes The Blood and Marrow Transplant Newsletter, a quarterly newsletter for bone marrow, peripheral blood stem cell and cord blood transplant patients and survivors, and other literature. Attorney referral service for patients having insurance reimbursement problems. Links prospective BMT patients with post-transplant patients.
The Bone Marrow Foundation
337 East 88th Street, Suite 1B
New York, NY 10128
Provides financial aid, education and emotional support for bone marrow and blood stem cell transplant patients and their families.
Caitlin Raymond International Registry
University of Massachusetts
55 Lake Avenue North
Worcester, MA 01655
Comprehensive resource for patients and physicians conducting a search for unrelated donors.
275 Seventh Avenue
New York, NY 10001
Provides counseling, education, information, referrals and direct financial assistance.
Cancer Fund of America
2901 Breezewood Lane
Knoxville, TN 37921
Provides educational resources and products free of charge for adults and children with cancer, including nutritional supplements, diapers, bed pads, rubber gloves and hygiene kits.
Cancer Information Service/National Cancer Institute
NCI Public Inquiries Office
6116 Executive Boulevard, MSC8322
Bethesda, MD 20892-8322
Provides most recent scientific information on cancers, treatment options and clinical trials.
Hendrick Marrow Program
4400 Papa Joe Hendrick Boulevard
Charlotte, NC 28262
Seeks to launch drives to recruit donors, raise funds for tissue typing and educate people about the National Marrow Donor Program.
The HLA Registry Foundation
70 Grand Avenue
River Edge, NJ 07661
Helps patients find compatible unrelated donors for transplants, and assists patients and their families with fundraising for tissue typing.
Immune Deficiency Foundation
40 W. Chesapeake Avenue, Suite 308
Towson, MD 21204
Publishes a newsletter and educational literature. Regional chapters provide patient and family services, insurance reimbursement and educational programs.
The Leukemia & Lymphoma Society
Western New York & Finger Lakes Chapter
4053 Maple Road, Suite 110
Amherst, NY 14226
National Information Resource Center
Funds blood cancer research, education and patient services. Provides supplementary financial assistance to patients in significant financial need, up to $500 a year in reimbursements.
3550 North Central Avenue, Suite 300
Phoenix, AZ 85012-2127
Attempts to fulfill the special wishes of children with life-threatening illnesses.
The MDS (Myelodysplastic Syndromes) Foundation
P.O. Box 353
36 Front Street
Crosswicks, NJ 08515
Provides referrals to Centers of Excellence, information on research and treatment options and educational support.
National Children’s Cancer Society
1015 Locust, Suite 600
St. Louis, MO 63101
Provides financial support to children up to age 18 and their families, for expenses related to cancer treatment including BMT, as well as education, information and advocacy.
National Foundation for Transplants
1102 Brookfield, Suite 200
Memphis, Tennessee 38119
Helps patients in need of a BMT organize fundraising activities and maintains accounts so donors can make tax-deductible contributions on a patient’s behalf.
National Marrow Donor Program
3001 Broadway Street, NE, Suite 500
Minneapolis, MN 55413-1753
800-627-7692 (general information)
888-999-6743 (patient advocacy)
Leader in the facilitation of unrelated marrow and blood stem cell transplants. Patient advocates available to answer questions and to help with financial issues.
RPCI Blood and Marrow Transplant Wellness Support Group
A Blood and Marrow Transplant Wellness support group for patients and caregivers meets at RPCI each month and is run by a social worker and nurse from the BMT unit. This can be a helpful source of support and information for individuals or families considering, undergoing or recovering from a BMT. The Department of Social Work and Case Management can provide more information.