Pedriatic Cancer Support Groups
Long Term Survivor's Clinic
Roswell Park Cancer Institute operates a Long-Term Follow-Up Clinic, created to provide specialized medical care and counseling to former childhood cancer patients. It was one of the first of its kind in the nation. Dramatic success in the treatment of childhood cancers has resulted in a population of survivors who may have unique problems, such as difficulty in finding employment, questions concerning their reproductive capability because of cancer and its treatment, and the possibility of developing other malignancies later in life. This Clinic assists cancer survivors in building full, productive lives.
Roswell Park is a member of the Children's Oncology Group. The COG is a collaborative group of many hospitals, research institutions and caregivers devoted to clinical research that will impact long-term survival in pediatric cancer patients. The COG offers many long-term guidelines that can be accessed at this here. These "Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent and Young Adult Cancers" and accompanying health links were developed by the COG as a collaborative effort of the Late Effects Committee and Nursing Discipline.
Pediatric Support Groups
Support groups afford an opportunity for patients, families and friends to discuss concerns, ask questions, share information and relate experiences. The Psychosocial Department offers support groups for pediatric patients and parents. All families are seen by a social worker and have on-going access to psychosocial support. A child-life specialist works with the children on the inpatient unit and the outpatient clinic.
