Print This Page
Brain Cancer Resources
This resource guide is intended to provide general and supportive information about Brain and Central Nervous System Tumors. If you would like additional information or print copies of the brochures listed below, please stop by the Community Cancer Resource Center (CCRC), call the ASK-RPCI line at 1-877-ASK-RPCI (1-877-275-7724) or email ASKRPCI@roswellpark.org.
General
What You Need to Know About™ Brain Tumors - National Cancer Institute (NCI) publication that discusses possible causes, symptoms, diagnosis, treatment, and follow-up care. It also has information about resources and sources of support to help patients cope with brain tumors.
Brain/CNS Tumors in Children – An American Cancer Society (ACS) publication that discusses brain and central nervous system tumors in children, their treatment, and provides suggested questions to ask your health care providers.
Cancer.Net - The patient information Web site of the American Society of Clinical Oncology (ASCO). With nearly 25,000 members in the United States and abroad, ASCO is the world's leading professional organization representing physicians of all oncology subspecialties who care for people with cancer. Cancer.Net provides timely, oncologist-approved information to help patients and families make informed health-care decisions, including information on brain tumors, central nervous system tumors, neuroblastoma, and pituitary gland tumors.
The Essential Guide to Brain Tumors – National Brain Tumor Society (NBTS) booklet about brain tumor, contains valuable information for newly diagnosed patients, long-term survivors, family members and health professionals.
Understanding Brain Metastases: A Guide for Patient and Caregiver - NBTS and Lung Cancer Alliance (LCA) guide explains brain metastases and their treatment and provides information about symptom management for the patient and the family caregiver.
Understanding Glioblastoma Multiforme – NBTS brochure helps patients and caregivers understand more about the diagnosis and treatment of Glioblastoma Multiforme.
Additional general information on lab tests, diagnostic testing and imaging, pathology, etc.
Screening and Prevention
NCI Physician Data Query PDQ®: Cancer Genetics Overview – NCI document for health professionals provides a framework for understanding the genetic basis of hereditary cancer.
NCI PDQ®: Neuroblastoma Screening - NCI document details screening procedures that may be used in the detection of neuroblastoma. Screening tests are given when you have no cancer symptoms. Screening tests may be repeated on a regular basis. Document is available in patient or health professional version.
NCI Study of Brain Tumors/Use of Cellular Telephones - NCI began a comprehensive study of possible environmental and genetic causes of malignant and benign brain tumors in 1994. The present report focusing on cellular telephones is one part of the much larger study and was intended to determine whether use of these devices increases the risk of brain tumors.
Treatment
NCI PDQ®: Adult Brain Tumors Treatment - NCI document that details treatment options for adult patients with brain tumors. Document is available in patient or health professional version.
NCI PDQ®: Childhood Brain and Spinal Cord Tumors Treatment - NCI document that details treatment options for children with brain tumors. Brain tumors can occur in both children and adults; however, treatment may be different for adults than for children. Document is available in patient or health professional version.
NCI PDQ®: Childhood Brain Stem Glioma Treatment - NCI document that details treatment options for children with childhood brain stem glioma. Document is available in patient or health professional version.
NCI PDQ®: Childhood Central Nervous System Atypical Teratoid/Rhabdoid Tumor Treatment - NCI document that details treatment options for children with childhoodcentral nervous system atypical teratoid/rhabdoid tumor. Document is available in patient or health professional version.
NCI PDQ®: Childhood Central Nervous System Embryonal Tumors – NCI document that provides comprehensive, peer-reviewed, evidence-based information about the treatment of childhood central nervous system embryonal tumors. This document is only available in the health professional version.
NCI PDQ®: Childhood Cerebellar Astrocytoma Treatment - NCI document that provides comprehensive, peer-reviewed, evidence-based information about the treatment of childhood central nervous system cerebellar astrocytoma tumors. This document is only available in the health professional version.
NCI PDQ®: Childhood Cerebral Astrocytoma/Malignant Glioma Treatment - NCI document that provides comprehensive, peer-reviewed, evidence-based information about the treatment of childhood central nervous system cerebral astrocytoma/malignant glioma tumors. This document is only available in the health professional version.
NCI PDQ®: Childhood Craniopharyngioma Treatment- NCI document that details treatment options for children with childhood craniopharyngioma tumors. Document is available in patient or health professional version.
NCI PDQ®: Childhood Ependymoma Treatment - NCI document that details treatment options for children with childhood ependymoma tumors. Document is available in patient or health professional version.
NCI PDQ®: Neuroblastoma Treatment - NCI document that details treatment options for children with neuroblastoma. Document is available in patient or health professional version.
NCI PDQ®: Pituitary Tumors Treatment - NCI document that details treatment options for patients with pituitary tumors. Document is available in patient or health professional version.
NCI PDQ®: Childhood Visual Pathway and Hypothalamic Glioma Treatment - NCI document that details treatment options for patients with childhood visual pathway and hypothalamic glioma Treatment tumors. Document is available in patient or health professional version.
Overview of Complementary and Alternative Medicine Therapies - NBTS fact sheet describes how Complementary and Alternative Therapies can be used during treatment for a brain tumor and what some of the more common therapies are.
Additional treatment information for all types of cancer.
Treatment Related Issues
How Tumors Affect the Mind, Emotion and Personality - NBTS fact sheet describes some of the cognitive changes that can occur due to a brain tumor and its treatments.
NCI PDQ®: Late Effects of Treatment for Childhood Cancer – NCI document that provides information on the long term effects of cancer treatment for childhood cancer survivors.Document is available in patient or health professional version.
Returning to Work: Is it Right for You? – NBTS brochure reviews brain tumor survivors' rights with respect to returning to work and suggests several strategies to make it an easier transition to go back into the workplace.
Young People with Cancer: A Guide for Parents – A NCI booklet that provides information for parents, family members and relatives of a child who has been diagnosed with cancer.
Information on treatment related issues for all types of cancer.
Nutrition
Nutrition information for people with all types of cancer.
Resources and Support
Learn more about RPCI's Brain Tumor Support Group.
Coping With Your Loved One’s Brain Tumor – National Brain Tumor Society (NBTS) brochure that describes important coping strategies for caregivers and family members of a loved one with a brain tumor.
The NBTS has support groups for patients (including one for young adults) caregivers and families. The locations are searchable by state or zip code.
Cancer support materials for people with all types of cancer.
Organizations
American Brain Tumor Association (ABTA) – The first national, nonprofit organization dedicated to promoting brain tumor research, while offering information and support to brain tumor patients and their families.
National Brain Tumor Society (NBTS) – National nonprofit organization formed by the merger of the National Brain Tumor Foundation (NBTF) and the Brain Tumor Society (BTS). Invests in research to find new therapeutic targets and improve existing treatments. Provides education and information to help patients, families, and caregivers make informed decisions and develop strong support systems from diagnosis through treatment, to end of care and survivorship.
Candlelighters Childhood Cancer Foundation – Not-for-profit organization dedicated to providing information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
Children’s Brain Tumor Foundation – A nationwide not-for-profit organization whose mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.
Pediatric Brain Tumor Foundation (PBTF) – Nonprofit charitable organization, also the world's largest non-governmental source of funding for childhood brain tumor research. Offers educational resources to deliver comfort and hope to families in need of information, and a college scholarship program to give brain tumor survivors a boost for the future.
Starlight Children's Foundation – A not for profit organization dedicated to improving the quality of life for children with serious medical conditions by providing entertainment, education and family activities that help them cope with the pain, fear and isolation of prolonged illness.
